by susan | Jan 19, 2022 | Episodes
Channing is a rare disease mama who has faced many ups and lots of downs over the last decade of motherhood. Her daughter, Peytan, has a condition called Cystinosis and is in need of a kidney donation. Today Channing is bravely opening up with us about how her anxiety...
by susan | Jan 12, 2022 | Episodes
Hello Season TWO in 2022! Today Suz and Diane are kicking off the new season back together, talking about milestones and goals for our medically complex, disabled children. Topics we talked about that you do not want to miss: Do you actually do all the goals?...
by susan | Dec 15, 2021 | Episodes
One year of amazing stories. One year and so many seasons. One year of inspirational guests. One year of learning how to use our mics. One year of friendships. One year of hope. It has been a year. Thank you all for being on this journey with us. Today we are...
by susan | Dec 8, 2021 | Uncategorized
Jen’s story has so many layers, it deserved two episodes! This week we are talking about a life changing decision Jen and her husband made to place their son Silas in a facility for disabled children. Jen openly talks about the decision making process, the grief and...
by susan | Dec 1, 2021 | Episodes
Trauma. Grief. Heartache. I know so many of us face these things on a daily basis. Today’s story is no different. Years into her journey, Jen is able to share details of her family, specifically of her two boys Carter and Silas. Hemophagocytic Lymphohistiocytosis...
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