by susan | Jun 9, 2021 | Episodes
Often, as an entry into special needs parenthood, moms and dads are given a poem by Emily Perl Kingsley titled “Welcome to Holland.” This poem explains to the reader how it feels to arrive in Holland when you were planning a dream vacation to Italy. Suz and Diane...
by susan | Jun 2, 2021 | Episodes
Dr Ami Mehta, a pediatric pain and palliative care doctor at CHKD. Today we have a candid conversation about how she helps care for children with complex medical needs, in addition to end of life care. She helps us understand what kind of role palliative care can...
by susan | May 26, 2021 | Episodes
We are so happy to have Angela on the show, talking about her life as an Autism mom to two beautiful children. Not only were we delighted to talk to her, but we are so incredibly proud of Angela for opening up with us. Two years ago, she was still hiding the fact...
by susan | May 19, 2021 | Episodes
This is Part 2 to Elizabeth’s story. Go back to episode 21 and start there if you didn’t listen. After losing her first son Kyan at just 36 days old, Elizabeth has another son (after a pregnancy of more grief). She talks about the beautiful relationship that her...
by susan | May 12, 2021 | Episodes
After complications during labor, Elizabeth and her husband spent 36 precious, traumatic, beautiful, scary days on Earth with their son Kyan James. Today she talks to us about their NICU experience, processing the unknown and then facing the worst case scenario,...
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